Fabry Community Provides information and support for people with Fabry disease, their caregivers and families, and their health care providers.
Fabry Disease Registry Information about an ongoing observational database that tracks the natural history and clinical outcomes of patients with this disease.
National Tay-Sachs and Allied Diseases Association An organization offering support and programs geared to families affected by Tay-Sachs Disease and over 40 other fatal degenerative genetic disorders.
