Neurodegenerative Diseases - Health Directory, Long Term Care, Nursing

Directory Listing(s)

EMSA-SG
Study group for Multiple System Atrophy.

Information and support for persons affected by Tuberous Sclerosis Complex in Canada.
Site includes contact e-mail sites for board members across Canada, fact sheets about TSC, a forum for sharing information, and portions of the TSCST newsletter, Connections.

Kennedy's Disease Association
Information about Kennedy's Disease, Symptoms, Chat, Forum.

MGH Center for Neurodegenerative Disease Research
Information on parkinson, huntington, alzheimer. Full text research papers, publication list, conferences and seminars.

Team Tamara
Nonprofit dedicated to raising awreness about Tuberous Sclerosis Complex; raising fund for The Children's Hospital of Phila., The Epilepsy Foundation, The Tuberous Sclerosis Alliance. Includes info links and Tamara's health updates.

The National Fragile X Foundation
Website of the National Fragile X Foundation with extensive information about the disease, its teatment, and inheritance.

Tuberous Sclerosis Alliance
US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families.

Tuberous Sclerosis Association
UK charity supporting sufferers, promoting awareness, and seeking the causes and best possible management of this genetic disease. Resources for patient families and information on this condition.