Marfan Syndrome - Health Directory, Long Term Care, Nursing

Directory Listing(s)

Canadian Marfan Association
Information, articles, events, a patient survey, and products. Also contains an article on Pharaoh Akhenaten who was believe to have the disease.

International Federation of Marfan Syndrome Organizations
A global information center providing links to Organizations around the world.

Jeanette Navia's Marfan Life Website
Including lists of penpals and other ways to connect with the community as well as information about the Syndrome.

Living With Marfans
This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.

Marfan Association UK
The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.

Marfan-List
Information about an e-mail mailing list. Also includes links to other online support groups.

National Marfan Foundation
Providing accurate and timely information about the disorder to patients, family members and physicians.