Ehlers-Danlos Syndrome - Health Directory, Long Term Care, Nursing

Directory Listing(s)

Coalition for Heritable Disorders of Connective Tissue
Research organization for genetic connective tissue disorders.

EDS Today
The newsletter for, by, and about people with the condition. Includes featured articles, columns, and contact information for support groups worldwide.

Ehlers Danlos Foundation of New Zealand
Support for sufferers of the Ehlers-Danlos Syndrome and related Hypermobility Syndrome and provides some information for the medical profession and general public.

Ehlers-Danlos National Foundation
American nation-wide support and information to those affected by EDS. Includes many articles, message boards, chat room, information for medical professionals, and regional support groups.

Ehlers-Danlos National Foundation - Michiana Branch
Support group for individuals and families from Michigan and Indiana who have the condition. Meetings are held in South Bend, Indiana. Includes schedule and maps.

Electronic Textbook of Hand Surgery
Eaton Hand provides a glimpse inside the hand, wrist, and elbow. Discover how your joints are supposed to work, what goes wrong in dislocations, and how injuries and ailments are treated.

Hypermobility Portal
Serves as a window to message boards, medical articles, support groups, and other resources for people with hypermobility disorders.

The Canadian Ehlers-Danlos Association
Working together to provide assistance, support and resources for people living with this rare genetic disorder.

The Hypermobility Syndrome Association
HMSA serves people with Hypermobility Syndrome, Ehlers-Danlos, and related joint disorders with information, referrals, message boards, and much more.

Wheeless Textbook of Orthopaedics
Technical information on joints, how they should work, and treatments for when they do not.